Scope of this Policy: Interfaith Voices for Reproductive Justice (IV4RJ) is committed to protecting the privacy, dignity, and confidentiality of individuals and communities who engage with our work.
This Privacy Policy covers two separate types of engagement with IV4RJ, which are handled differently:
Because these are distinct functions, they are governed by different ethical standards and data-handling practices, which are explained below.
For organizational events, programs, and general engagement, IV4RJ may collect information you voluntarily provide, including:
Information may be collected through:
IV4RJ may also collect limited non-personal information (such as browser type or pages visited) for basic website analytics.
Information collected through organizational engagement is used to:
Participation in IV4RJ events or programs does not constitute participation in research and is not subject to IRB oversight unless explicitly stated otherwise.
Information collected for organizational purposed may be shared only:
IV4RJ does not sell or share personal information for commercial purposes.
Some IV4RJ organizational events may be recorded or photographed for documentation, reporting, or educational purposes. Such media may be used for the website, external marketing materials, and IVRJ social media platforms.
For IRB and research oversight purposes. IV4RJ may collect:
Information submitted for IRB review is used solely for:
Access to IRB materials is limited to authorized IRB members, reviewers, and designated IV4RJ staff, all of whom are bound by confidentiality and conflict-of-interest expectations.
IRB-related data are stored separately from general organizational data and are protected using appropriate administrative and technical safeguards.
Research data overseen by the IV4RJ IRB may be analyzed, reported, or shared in de-identified or aggregated form for scholarly, educational, or policy purposes, consistent with the terms of participant consent and applicable ethical standards. Identifiable information will not be shared unless explicitly authorized by the participant or required by law.
IV4RJ uses Sitero, a third-party platform, to manage IRB submissions, reviews, and related research oversight activities. Information submitted through Sitero is subject to Sitero’s privacy and security practices. IV4RJ does not control Sitero’s privacy policy or data-handling practices but has selected the platform for its use in research ethics administration.
Where individuals interact directly with Sitero, they are encouraged to review Sitero’s privacy policy (LINK HERE).
IV4RJ is not responsible for the privacy practices of third-party platforms but seeks to work with vendors that support confidentiality and ethical research oversight.
ADD HERE ABOUT COMPLIANCE – LINK IT.
IRB and research-related information is retained only for the period necessary to meet ethical, legal, and regulatory obligations. Confidentiality is maintained in accordance with principles consistent with the U.S. Common Rule (45 CFR 46). While IV4RJ is committed to confidentiality, there are limited circumstances in which information may be disclosed without consent, including when required by law, court order, or regulatory oversight, or to comply with mandatory reporting obligations applicable to certain research activities.
Data Security
IV4RJ uses reasonable administrative, technical, and organizational safeguards to protect personal information. While we take data security seriously, no system can guarantee absolute security.
Your Rights
Depending on the nature of your engagement with IV4RJ, you may have the right to:
For IRB-related records, requests for access or deletion may be limited by ethical, legal, or regulatory requirements, including obligations to retain research records for oversight and compliance purposes.
Changes to this Policy
We may update this policy periodically. The effective date reflects the most recent update.
Contact
For questions about this Privacy Policy, organizational data practices, or IRB-related confidentiality, please contact: info@iv4rj.org
